My husband and I met when we were in high school. Though it was far from love at first sight. It took us 3 years to realize that maybe we should give it a shot. We did the whole college thing, got married, and had our daughter Lex on May 23, 2008.
When Lex was born she was in the NICU for a week underneath an oxygen tank and hooked up to multiple machines to get her breathing correct.
Finding a job proved to be rather trying so my husband joined the Air Force.
After 5 months of separation due to Air Force training the hubs got orders to our first base in the middle of nowhere New Mexico.
Three months after arriving to our new home we found out we were expecting another miracle. We had to again pack everything up and move from our tiny 2 bedroom house to a much larger house to accommodate our growing family.
On April 30th, 2010 our son Kaiden was born. He was born with a port-wine stain birthmark on the right side of his face. Ever since we have been in and out of doctor's offices attempting (with little progress) to make sure that it is ONLY a birthmark and not a symptom of a more severe syndrome known as Sturge-Weber Syndrome.
So far we have seen a Pediatric Neurologist and a Dermatologist.
In a few days we will be headed to have and MRI done and an EEG done to check for a stain on the brain and any seizures.
After we get those results we have to see a Pediatric Ophthalmologist to check for glaucoma.
And then we go see a Pediatric Dermatologist to discuss our options for treatment.
We have a lot ahead of us and we just pray everything comes back normal.
I will be updating this regularly with information we receive, and just about life in general!
So glad you found our blog! I'm excited we'll be able to follow along with your journey as well. Please keep us updated.
ReplyDeleteJust curious - how did you find our blog?
Cheers,
Jewel, Graham and Enler
I found the link on facebook while searching for othe PWS mommies.
ReplyDeleteHi, your little one is gorgeous! Have tried to set up my own blog "4 boys" but i'm not very good. Anyway you'll see my little one on there. we will follow your journey along with ours!
ReplyDelete